#1 Indiana Disability Resource FINDER

Yesterday, we officially launched a new free program just for Indiana called IndianaDisabilityResourceFINDER.org! Affectionately nicknamed FINDER, it’s another step in our master plan to make it easier for people of all abilities to identify and locate disability-related resources in their local communities. Funded by AWS Foundation, FINDER was made possible with the help of nonprofit organizations, State of Indiana representatives and families from across Indiana… And we are just getting started (Click here for video).

Why FINDER?

For years, parents have talked about the many challenges they face when trying to navigate a complex web of services, programs and other disability-related community resources. They face huge road blocks in trying to identify what local resources are available to help them. Interestingly enough, when we talked with service providers, they too had difficulty finding information to assist the many unique needs of each person they served. If experienced professionals are challenged to locate information, how hard is it for someone new to the disability community?

Enter IndianaDisabilityResourceFINDER.org. It offers individuals reliable, timely and geographically relevant information so they can make an informed decision on what is right for them and their personal situation.

FINDER collects and organizes contact and service information from around Indiana, giving 24/7 access to timely and reliable information improving quality of life for Hoosiers living with an intellectual, developmental or physical disability.

What’s listed and how are listings added?

FINDER contains nearly 2,000 service providers located across the state with the potential to include thousands more. To grow the system, program, service and equipment providers are asked to logon to IndianaDisabilityResourceFINDER.org to check for their listing. Once found, they can claim their listing and update existing information. If they are not listed in FINDER, providers can sign up to enter their information. Also if you know of a resource that is missing from FINDER, you are encouraged to submit information online at IndianaDisabilityResourceFINDER.org. Before it’s published, all information displayed on FINDER is reviewed and verified.

While we are excited with all that’s been accomplished, we know that the adventure is just beginning. Every time FINDER is used, we will learn more from each search, listing and search result. It’s how we will continue to improve! Please help us by searching FINDER for information in your community today. For more information, email Info@IndianaDisabilityResourceFINDER.org.

AWS Foundation in collaboration with nonprofit organizations and State of Indiana representatives, Announces Indiana Disability Resource FINDER program.

Fort Wayne (March 21, 2019) – AWS Foundation announced today the creation of Indiana Disability Resource FINDER (IndianaDisabilityResourceFINDER.org). The online program was developed through a collaborative effort with State of Indiana representatives and dozens of nonprofit organizations located around the state to connect individuals with disabilities, their families and caregivers to services, programs and supports in their communities across Indiana. This state-wide program known as FINDER is free.

 

FINDER is designed to collect and organize contact and service information from around Indiana, giving 24/7 access to timely and reliable information improving quality of life for Hoosiers living with an intellectual, developmental or physical disability. AWS Foundation covered all direct costs for the project and thousands of hours were spent by community members, organizations and Foundation staff over the last two years to establish Indiana Disability Resource FINDER (IndianaDisabilityResourceFINDER.org).

 

“Over the years, AWS Foundation has continued to ask individuals, families and caregivers what could be done to best assist them. Locating reliable information was always at the top of the list. We realized if the Foundation could solve the information problem, it would be a game changer,” says Larry Adelman, AWS Foundation Board Chair.

 

To date, over 100 program and service providers around Indiana along with nearly as many self-advocates and family members have participated in the development process to determine how best to easily access and share quality information. FINDER (IndianaDisabilityResourceFINDER.org) is the first phase of the project released for public use.

 

“When a family hears of a diagnosis that will have life long implications the first reaction might be “What should I do now?”.  FINDER will help empower that parent, teacher, caregiver or other to find answers to their questions and become a more informed advocate,” says Patti Hays, CEO of AWS Foundation. “Access to knowledge is empowering.”

 

Currently Indiana Disability Resource FINDER contains nearly 2,000 unique service providers located across the state with the potential to include thousands more. Program, service and equipment providers are asked to logon to IndianaDisabilityResourceFINDER.org to verify if their information is on the website. Organizations can update an existing listing or enter new information. All information displayed on FINDER is reviewed and verified before published.

 

“The state of Indiana is well aware that each individual with a disability is unique and requires their own treatment plan that will help them thrive,” Lt. Governor Suzanne Crouch said. “By connecting providers, individuals with disabilities, their families and caregivers, we are widening the pool of resources and will ultimately get better care to our friends with different abilities.”

 

“Trying to raise two sons with autism while also being their advocate meant that I needed to understand what service options were available and how to access them. The problem is that we don’t know what we don’t know or where to even begin,” states parent Kelly Pence. “The idea of having one central database for all of us to contribute to and access vetted, current information is a breath of fresh air.”

 

When an existing program was not found that could answer all of Indiana’s needs, a Fort Wayne company was selected by AWS Foundation to develop new software. Aptera, Inc. participated with individuals, families and service providers in a discovery process designed to fully understand what was needed to support the wide range of community requirements before being awarded development work for the FINDER site.

 

“When AWS Foundation approached us with this project the entire Aptera team was excited about the opportunity,” states TK Herman, President & CEO of Aptera, Inc. “There are so many great organizations around our state that significantly impact the lives of our families, friends and neighbors living with a disability. Knowing that we could develop a program using leading technology to help others more easily find the support they need is incredibly satisfying. Of all the projects we have worked on as a company, this project is the most impactful to the community.”

 

AWS Foundation asks that if a resource that benefits the disability community is missing from the FINDER site, individuals are to submit information online at IndianaDisabilityResourceFINDER.org.

Special Education Series Part 5: Educator Perspective

In this final newsletter of the case conference series, I’d like to dive into the 90/10 rule.  The rule is fairly simple – 90% of your communication with parents should be focused on positive goals, solutions to problems, and acknowledging progress, while 10% of your communication should be focused on problems or issues.  Where things get more complicated is when you begin to think of all the 90/10 rule can apply.  Without getting overwhelmed let’s break it down into two categories, case conferences and general communication.

For case conferences it is important to consider this rule when creating your agenda.  If you are not using an agenda, this is critical.  Positive and effective communication doesn’t happen by chance.  It happens when thought and planning has been put behind the words.  As you are listing concerns and issues that need to be addressed, make sure for each one you are also listing several possible solutions.  Another general rule is the 4:1 ration of positive to negative feedback.  So, for each concern be sure have four positive statements to add to them conversation.  Again, this will require planning ahead of time but will likely make your meeting and future interactions with the family much more positive and productive.  When thinking about a case conference length, generally speaking they run about an hour so make sure at least 50 minutes of that hour is spent on problem solving and setting positive goals, while no more than ten minutes is spent discussing problems.  Be sure to encourage any other staff attending the conference to follow the same rules.

As for general communication, the focus should on what do you have in place as an educator to communicate positive feedback.  Do you have times scheduled into your plans to contact parents only to share something positive?  Do you ever reach out to students in some way only to provide positive encouragement?  Do you ever have planned celebrations when students reach a goal?  Do these celebrations include communicating with the parents?  Communicating when something goes wrong or there is a problem tends to come more naturally in the school environment and is an important part of communication; however it’s the effort you put into the positive communication that will help you to develop a true working partnership with parents and guardians.  And when we know that partnering with families improves student outcomes, why would we not make these efforts?

Grantee Spotlight: GiGi’s Playhouse

It’s hard to find someone who doesn’t already know this organization, but for those that don’t, GiGi’s Playhouse Fort Wayne is a Down syndrome achievement center. The Fort Wayne Playhouse opened in January of 2016 with the support of community members and grants. With their free programming, individuals with Down syndrome are supported from birth through adulthood. Thursday, March 21st is World Down Syndrome Day, so we thought that March would be the best time to put the spotlight on this fantastic grantee.

In the three short years since their doors opened, GiGi’s Playhouse Fort Wayne has shown immense growth.  Their 2019 participation numbers are doubling from that of last year at the same time. They have also been able to add additional programming such as a preschool and under playgroup, GiGiFIT, Drums Alive and additional days for Cooking Club. With the opening of GiGi’s Genesis Health Bar they continue enhancing skill building and promoting awareness in our community.

“GiGi’s Genesis Health Bar continues to increase confidence, communication and overall employable skills in our GiGi U graduates,” says Holly Tonak, GiGi’s Playhouse Fort Wayne Executive Director. “Oftentimes, we hear that the day they work at Genesis is their favorite day of the week.” Holly refers to Playhouse participants as her friends and considers herself lucky to know them all.  That is true for anyone that gets to meet one of Holly’s friends as the confidence they build at the Playhouse radiates from them.

Be sure to check out Genesis Health Bar and the GiGi’s storefront. Not only will you support a worthy organization and learn about Holly’s friends, but are sure to find some great eats or a nice gift for yourself or someone else! Genesis is open Monday – Friday, 10am – 4pm and is located at 6081 N Clinton Street in Fort Wayne.

From the CEO: Women and Disability

I am not a fan of recognition days. National Nurse’s Day. (May 5)  National Pi Day (3.14 of course) and National Get over it Day (March 9 th)…someone has way too much time on their hands.

In 1987 Congress passed a resolution declaring March as National Women’s History Month. March is also Disability Awareness month albeit by designation a year later in 1988. I started to wonder if we could combine the two.

When I have thought of inspirational individuals related to disability in the past, they were primarily male. Matisse or Stephen Hawking and President Bush. I did write once about Harriet Tubman, but looking through history and literature, the stories of men seem to be a little more prevalent.

So for March, let me share a few links where you can find some stories, some perhaps inspirational, some funny and some you may know. Let their words carry you through this month and hopefully longer. Be one of the women who will make a difference in the world…or help one believe they can be that person.

Helen Keller

Simi Linton

Stella Young

Let’s not make it a special day or a special month. Be aware every day and see how you can include people of all abilities each day. I would like to think that I appreciate a good chocolate chip cookie any day (August 4).

From the CEO: Lessons from Microsoft

Truth be told, I am a Steeler football fan, so this year’s Super Bowl had little draw for me. But I watched anyway because the commercials and game would be the conversation on Monday. There was one commercial that stood out.

It was an ad that featured Owen. Owen has Escobar Syndrome, an inherited disease resulting in joint contractures and impaired muscle movement. He and others with upper extremity deformities were shown enjoying the world of video games.

I love that Microsoft developed an adaptive controller ($99.99). Millions of people saw that commercial and likely thought “what an innovative and empathic company”. I admit I got tears in my eyes.

After that commercial, I did research about Microsoft. They have a Disability Answer desk! Assistive technology is so critical for those with differing abilities. There are good videos to provide additional support. I learned that gamers with disabilities helped design the new adaptive controller. They even eliminated some of the difficult packaging (twist ties, hard plastic zip ties, etc) to ensure that gamers with limited mobility could be able to easily access the device without the need for help!

But my thoughts went another way when I watched that ad. I didn’t think of Microsoft. I didn’t think of Owen. I didn’t think of the other children shown who gleefully used that adaptive controller in order to be competitive. I thought of all of their friends.

We saw all of those kids who played with Owen and the other profiled children. Either on their own or with encouragement of others, they celebrated Owen being able to competitively play with them. In the commercial, those were Owen’s real life friends- not actors.

Microsoft also supports Unified Robotic teams in partnership with Special Olympics where kids interested in STEM fields are partnered with a Special Olympic athlete for team competition. For many of those STEM students that robotic design competition may be their first opportunity to really share time with a student with special needs.

If you are a parent of a child without disabilities, are you encouraging your children to be a part of unified teams at their schools? Are your children friends with others of differing abilities? I would hope that you are talking with them about our differences and similarities.

Through that Unified Robotics program, kids get first-hand experience getting to know kids with differing abilities. One quote on Microsoft’s blog: “These other kids saw somebody who had worked so hard at something they take for granted…It impacted them so much. They learned about tenacity.”  Give your child those opportunities to meet Owen and the many other kids who want to play.

When everybody plays, we all win.

New Scholarship for Special Educators

We at AWS Foundation often talk of those we serve overcoming barriers to achievement. Our support lifts our grantees over their barriers. Those grantees help individuals with disabilities overcome their barriers. Now, we’re taking on a new barrier: having enough specialized licensed teachers in special education in Northeast Indiana. Through a fund at Community Foundation of Greater Fort Wayne, we now offer an annual scholarship to special educators seeking additional licenses to better serve their school districts. Let’s meet our first two scholarship recipients:

Kimberly Luke-Scherer (center) with Jenny Snyder (left, AWS Foundation) and Krista Arnold (Community Foundation of Greater Fort Wayne)

Kimberly Luke-Scherer

Kimberly Luke-Scherer is a Functional Life Skills teacher at East Noble High School. With 13 years of experience, she has several education licenses and a Master’s in Intense Intervention. Her dedication to inclusive practices shows in her extensive effort to co-teach in the general education setting where peers are partnered with special education students to assist with social skills, mentoring, and instruction. She has great aspirations to make an impact in the special education world and this scholarship will go to her obtaining a Special Education Director’s certificate. “As a Director, I will be able to mentor those in the Special Education field, guide decisions and programming, and above all touch the lives of a greater number of students,” Scherer says. “These students have stolen my heart and inspired me to advocate for their needs, rights, and to forge new opportunities.”

Jennifer Pose (center) with Jenny Snyder (left) and Krista Arnold

Jennifer Pose

Jennifer Pose’s passion for special education comes from her own experiences with her teachers as a low vision student. They empowered her to do things that she was often told she would never be able to do, including learning to drive. Dedicated to reaching her career goals, she overcame her fear of driving as someone who has been declared legally blind, during her undergraduate years in order to prepare for student teaching. “From the very beginning my low vision teachers encouraged me to be an advocate for myself,” says Pose. With the help of our scholarship, she is pursuing her Blind and Low Vision license to pass that encouragement on to students like her. “I have a passion for special education because I have always wanted to assist my students and their parents to feel empowered.”

New Chief Program Officer: First Thoughts

Since officially beginning my job as the new Chief Program Officer on January 2nd, the words Independence, Inclusion, and Potential have taken on new meaning. Even though I have worked for 35 years in the field of disability and always supported those words in an educational setting, my new position allows me to see how they play out in everyday life.

From my current vantage point, I am seeing every day how the word ‘community’ is what brings each of those powerful words to fruition.  As we build independence in our students, we are molding independent adults.  As we raise our expectations and help students achieve their full potential, we are increasing opportunities in the workforce. As we work to create inclusive environments in our schools, we are leading individuals and families to expect inclusive communities.

Each grantee I am able to meet, each program I am able to visit, and each community member I interact with reaffirms that we are truly heading in the right direction. If we continue to honor and respect the potential of all individuals across the lifespan, we will continue to build schools, programs, and communities inclusive of all. I am excited to be starting my adventure with AWS Foundation and NE Indiana and look forward to working with you.

Special Education Series Part 4: Parent Perspective

With a successful case conference under your belt, you probably want to know what comes next. It is important for you to follow up to ensure that your child’s IEP is followed throughout the year. This also means doing your part at home. Consistency is key for the educational success of your student. Here are some tips for staying on track and advocating for your child:

  • Keep in contact with educators involved in your child’s education. Especially their teacher of record/and or special education teacher. Your child’s teacher of record is responsible for reporting progress on IEP goals on a routine basis. Make sure to note that during the case conference and review these progress notes when you receive them. In addition, you can contact any of your child’s teachers with questions or concerns at any time. Depending on the needs of your child, you may try to establish routine communication with the teacher of record. And, without a doubt, if you feel the IEP is not being implemented, contact the teacher of record to voice your concern.
  • Keep folders. It is beneficial to keep separate folders of report cards, IEP copies, correspondence with educators, notes from case conferences, etc. Have them organized by year as well, so that you can monitor your child’s progress. This ensures that you are up to date for the next case conference and may raise points not brought up by educators.
  • Always take a look at your child’s school work. Stay up to date on what your child is learning, and monitor how well they understand the content.

Special Education Series Part 4: Educator Perspective

A foundation for a strong partnership is communication.  While I have seen many teachers work to establish lines of communication, sometimes it is easily forgotten the impact our words may have on students and parents.  It’s a very rare occasion when a teacher doesn’t have a student’s best interest in mind when communicating, but when we get too caught up in meeting compliance requirements, we can lose touch with which parts of the message are truly the most impactful to the child’s life … including life beyond school.

Any time we communicate with a parent we are either building or tearing down the relationship.  Even when something difficult must be communicated, it can be done without passing judgement and maintaining high expectations.  We have to understand the impact of our words.  In all situations, we must carefully consider whether our words might harm or heal.

The term “reality police” sometimes comes to mind when I think about teacher to parent communication.  Certainly our school accountability system can make it very challenging to stop focusing on a child’s deficits; but as educators we need to be so careful that our communication is rooted in high expectations.