Young woman in blue shirt posing with her arm around a boy with a disability in a red shirt. They are at a playground.

From the CEO: Collective Effervescence

In May, I attended an outdoor gathering with my husband’s partners and co-workers when I fully realized how much I had missed the joy that comes with gathering with friends. We have been cautious during the pandemic and limited face-to-face meetings with anyone. Masks, social distancing, limited group sizes, and short times together were the routine for all but our inner circle. Enough people had been vaccinated in that May gathering that masks were shed in that large, ventilated room.

By the end of the evening, I was energized. I had talked with people with whom I had only seen via social media for more than a year. There was a back-and-forth exchange of stories and updates that filled my heart. I did not fully realize what had been missed since the spring of 2020.

I learned earlier this month the name of that feeling: Collective Effervescence. In his New York Times article, author Adam Grant shared that term, first coined by sociologist Emile Durkheim, as “the sense of energy and harmony people feel when they come together in a group around a shared purpose.”  He goes on to write that even introverts are energized with social interaction. Emotions, as with COVID 19, are contagious.

We laugh more when we are in a group than when we are alone. In a crowd, I sing louder with my favorite Jimmy Buffet song than when in the car alone.  My cheers with a homerun are always more exuberant with the hometown crowd. Even yoga practice in a group brings greater peace and inner calm than the one done in private.

That shared exuberance is the desired outcome of the grants from AWS Foundation when we fund the arts, parks and all areas of social enrichment. Now, more than ever, we need to ensure that those opportunities for collective effervescence are available to everyone. Since March of 2020, we have all lost that shared purpose. Church services, book clubs, and family gatherings can all happen via zoom, but they lack the shared energy and harmony.

Every day more and more of us are vaccinated. There are many days of warm weather left in the summer. Parks give us room to stretch out and laugh, sing and dance in a group. Reach out to your neighbors, FB friends, and all those who you haven’t seen in the past year. Invite them over for a dose of collective effervescence.

Black History Month

From the CEO: A Year in Our Building

As we wrap up 2020 (Thank God), it is our last newsletter of the year. Andie Mosley is very organized with identifying themes for each month’s newsletter at the beginning of the year. We know when articles are due and what the focus should be, often timely to the given month.

Looking at the title for this month, it was all I could do not to laugh out loud(I did let out a little bit of a chuckle).

It was December of 2019 that we were able to move into our new building and the one year anniversary was the opportunity to reflect on a year’s worth of activities.

Looking from the outside you can see that it is a beautiful building. You will just have to take my word that it is similarly magnificent inside because since March, we have been in a virtual lockdown.

Our goal was to have a building that would host diverse community groups in this accessible space built and furnished with universal design concepts. We anticipated groups in the evenings and on weekends. We envisioned providing internships and work experience for individuals with varying abilities. Two well-equipped classrooms would host educational sessions and board meetings. We included a spacious parking lot to manage the throngs. You can credit the Yiddish proverb or Public Enemy, but we were reminded: Man plans God laughs (or Woman plans God laughs).

It has been our home for 2020 and it has done its job even if it was not as envisioned.

PJ and Patti preparing masks for service providers

  • When office space is designed to accommodate power wheelchairs or service animals using extra-wide halls and space between work stations, it is ideal for social distancing
  • Protected doorways with high porticos served ideally for distributing masks and gallons of hand sanitizer on blustery April days to dozens of grantees and service agencies
  • A large parking lot is an ideal spot for a food distribution site
  • Remote conferencing facilities built to allow inclusion of those who might have transportation problems were ideal for Zoom staff calls and virtual board meetings
  • A family bathroom helped minimize the spread of germs through body waste by providing extra private use. Look it up
  • Our new phone system seamlessly transferred all calls to individual cell phones giving the perception that the office was staffed by everyone on each business day
  • Sidewalks and landscaping provided a path for staff to walk when fresh air was the best medicine
  • One touch door opener makes it easier to open doors with a touch of the elbow after washing hands

Sure, we missed seeing all of you in our offices but we have gotten very good at zoom virtual site visits. While you haven’t been visiting, the birds have been enjoying the bird feeder and there was one red tailed hawk that had a spring banquet on a couple of goslings.

Celebrating Vicki’s birthday via Zoom

It has been a busy year, perhaps not how we had planned, but we have had a safe and efficient work environment that has kept us working as a team to meet our mission. We will plan for a better 2021. Did I just hear another laugh?

Giving Tuesday 2020

Every year, philanthropy is an important part of community involvement. This year, non-profits need your help more than ever. AWS Foundation offers a match to direct disability service providers in Northeast Indiana each year in the amount of $10,000. This means, that if you donate to these organizations on December 1, 2020, your donation will double. These are the organizations eligible for the match this year:

Man in wheelchair at base of large staircase unable to move up. Able-bodied man running up the stairs to financial gain.

From the CEO: The Hardest Part of Disability is Being Ignored

I have been saturated lately with “…ism” words. Words like racism, sexism, and ageism to name a few.  They each reference a form of oppression. Cruel or unjust treatment to individuals in our community who are different, often through no choice of their own.

One other ism is ableism. Ableism is when a person with a disability is stigmatized, stereotyped or pitied or, in a simpler definition, ableism is the belief that disability is a bad thing.

Oppression can be expressed in different ways. It can be exhibited personally through attitudes and behaviors. Are you likely to interrupt a woman before she is done speaking or do you overlook an older applicant? Oppression can be demonstrated culturally through language and norms. What words are in your vocabulary that might reflect that cultural oppression? Girls? Sweetie? Thug? Or is the oppression seen institutionally with restrictions with education and housing? How diverse is the neighborhood you live in?

Fort Wayne has started a new initiative to address all oppression and AWS Foundation is joining. I would encourage you to learn about United Front. Throughout Fort Wayne, individuals, work groups, anyone who is interested, is learning about the damage of oppression and working to identify a path towards the goal of equity and inclusion. We are joining in that path to inclusivity for all because we know that true inclusive thinking is acknowledging that:

disability is a wonderful part of diversity
disability is a part of Fort Wayne
disability is more than a diagnosis; it is a cultural identity
people with disabilities have the right to live where they want and the way they want.
I heard someone this week say that we needed to get used to the “D” word. There are many who have a physical and/or mental condition that limits how they interact with their environment (yes, that is the definition of disability). Our opportunity is to meet that disability with compassion because the hardest part of being disabled is being ignored.

To quote the philosopher Schopenhauer, “Compassion is the basis of morality”. I aspire to meet each person with a disability with compassion. Not pity, for that is ableism.

Compassion is kindness and caring and the willingness to help another. Compassion literally means “to suffer together” but I also believe it is compassionate to prevent the suffering of others. If we work to allow an individual equal standing and access in our society, isn’t that compassion? To see and acknowledge all persons, to introduce yourself, to call each person by name, to include them in the conversation, to invite each to join in, to offer a seat at your table, that is compassion in that you have truly engaged and not ignored.

The opposite of compassion is indifference. We are a moral community. We cannot be indifferent to those who are different.

Voting with a Disability

Your vote ensures your perspective is considered in the determination of our public officials at the federal, state, and local levels. Individuals with disabilities need to be included in that decision. All Indiana citizens, minus a few considerations, have the right to vote. This involves individuals with disabilities. Better yet, you have the right to access voting by any means needed. So, what are your options?

In-Person Voting

If you are willing and able to show up on November 3rd, go for it! You can also vote early at the locations, dates, and times determined by your county’s election board. The Help America Vote Act of 2002 requires that there be at least one accessible voting machine at each polling location. You are also entitled to assistance either from a friend or relative, or two poll workers (one from each political party). If you bring someone to assist you, make sure they remember to bring their ID too.

Voting by Mail

You may be uncomfortable receiving assistance at the polls or unable to physically make it to your polling location. That’s okay! Individuals with disabilities are eligible for absentee voting by mail. The first step is completing the absentee ballot request form which can be found at https://indianavoters.in.gov/MVPHome/PrintDocuments. You can mail that request to your county’s election board (a list of locations by county will be attached to the form). The request for an absentee ballot is due by 11:59 pm on October 22. Once the request is submitted, you will receive your ballot in the mail. It is better to request your ballot as soon as possible as the mail does take time. Once you receive your ballot, fill it out and mail it back to the election board, or hand deliver it to their office, by Noon on November 3. Remember, the ballot must be in their office by this deadline, please mail it with as early as possible to ensure it makes it there in time . The United States Postal Service suggests two weeks.

Voting by Traveling Board

If you do not wish to mail in your ballot, you are entitled to have a traveling board of a bi-partisan team come to your home with your ballot. A member from each party is present to ensure everything is processed fairly. You can fill out your ballot yourself, or with the assistance of a family member/friend/caregiver, or the traveling board team, then hand the ballot to the team to take with them that day to be counted. If you are unable to sign the ballot yourself another person present can do this for you. The person signing for you must write their name and address on the ballot as well. If you are able to make a mark, it is recommended to do so. You can find the form to request a traveling board vote at https://indianavoters.in.gov/MVPHome/PrintDocuments, which must be submitted to your county’s election board by noon on November 2.

Whichever method you choose, get out there and vote! The deadline to register to vote is October 5 and you can do that online at https://indianavoters.in.gov.

Patti Hays, CEO

From the CEO: Power of Words

One of my oft repeated quotes is from Maya Angelou:

“Do the best you can until you know better. Then when you know better, do better”

July 26th will mark the 30th anniversary of the Americans with Disabilities Act, a transformational law that continues to protect those with disabilities from discrimination. After 30 years, many of us know better and are trying to do better and still many fall short with their words and thoughts.

What is the power of a word? That old “sticks and stones adage” is wrong…words can harm. While the tongue may have no bones, there is little doubt that its actions can strike the sharpest blows.

It is hard to believe the words used as descriptors in previous generations we would categorize today as derisive. Below are the words used to categorize levels of abilities just 100 years ago.

Idiots—Those so defective that the mental development never exceeds that of a normal child of about two years.
Imbeciles—Those whose development is higher than that of an idiot, but whose intelligence does not exceed that of a normal child of about seven years.
Morons—Those whose mental development is above that of an imbecile, but does not exceed that of a normal child of about twelve years.
— Edmund Burke Huey, Backward and Feeble-Minded Children, 1912

Huey was a recognized 20th century psychologist, but use of these words today would guarantee labeling him as a bully.

Some buildings remain in use today of the Fort Wayne Asylum (later School) for Feeble Minded Children. When the original 1889 school on State Street was demolished in 1983 a single small pillar of the entrance was preserved. Today it stands to remind us of its existence and is marked with a plaque referencing a once “place to learn to be productive citizens”.

Typical of the language of 1983, the students of the school were referenced as “mentally retarded children and adults” on that same plaque. In the mid-twentieth century the words “mentally retarded” with categories of mild, moderate and profound, were created to replace those used by Huey above. It wasn’t until October of 2010 that Congress passed Rosa’s Law. Rosa was an 8-year-old Maryland girl with Down Syndrome who was bullied and taunted by the “R” word.

With Rosa’s law came the requirement that person first language and the more respectful “intellectual disabilities” be used by all federal agencies.

Thanks to Rosa and many others, today we know better on the power of words. AWS Foundation asks you to join us to erase those two outdated words on Monday July 27th at 10am. The bronze plaque will be moved from that brick column to become part of the collection of the Fort Wayne History Center. A similar plaque will take its place but will instead reference the previous home for “children and adults with intellectual and developmental disabilities”

“Words are the clothes thoughts wear.” –  Samuel Beckett