From the CEO: Early Diagnosis

My husband and I enjoy going to movies and try to see each of the Oscar nominated films at this time of year. 2017 had some great films but the winner of the Best Live Action Short Film award, The Silent Child, was the one I watched the day following the broadcast last month.

I found the movie on Amazon Video and watched its brief 21 minutes. I was sitting alone, so no one heard my feelings escape my heart through my tears.

The character in the movie was diagnosed as hearing impaired in her first year of life, but the family made no efforts with sign language until she approached school age. The story goes on to profile what is described as “one of the loneliest disabilities” and the avoidable struggles that deaf children face.  When Libby is given the gift of communication by a social worker, she moves from a world of isolation to the one that is inhabited by others. She finds play, friends and happiness.

The writer’s father lost his hearing when she was a young girl and she saw the isolation and lack of inclusion of those who live in that silent world. She knew of the challenges of mainstreaming the hearing impaired student if there was no specialized support available.  It is a beautiful short film illustrating the joy of the child when someone reaches out and shares the tools necessary for her to be a more included member of her family as well as her small village.

Any condition, including disabilities, when diagnosed early, has the potential for better future quality of life for the individual than a diagnosis delayed. The age to diagnosis for some intellectual and development disabilities in Indiana is twice the national average!  In the movie, Libby’s family knew of the diagnosis but delayed their actions. That delay contributed greatly to her isolation and intermittent behavioral problems. How do we improve not only the time to diagnosis but the path for interventions as well?

As you will read in this newsletter, we are working with statewide resources to help expedite navigating the path for families who are in search of answers to their questions regarding early diagnosis and access to interventions and support. AWS Foundation has funded additional grant dollars to address these areas over the years to provide family peer support, education and to provide access for information for people of all abilities with our annual Disability Expo. But there is still much to be accomplished.

In the meantime, I would challenge you to consider how you might be able to invade that world of isolation that can be the normal for too many with disabilities. Is it a smile and a greeting? Try introducing yourself and asking their name. Is there an event where an invitation might be extended? It might be to invite them to join you at the next movie you see.  Pass the popcorn.

Disability Awareness Month

As we approach Indiana’s Disability Awareness Month in March, it’s a great time to reflect on the way we treat individuals with disabilities.  If your response to that thought is not “just like everyone else,” you may need to rethink your approach.

Ask yourself these questions. Do you avoid eye contact when passing a person with a disability? Do you act overly cautious when around someone with a disability?  Do you instinctively help someone with a disability without first being asked for your help or asking if your help is needed? If your answer was yes to any these questions, here are some tips.

  1. Don’t make assumptions. People with disabilities are capable of doing most everything the rest of us can do. If you see someone struggling, ask if they want your help, don’t just jump in as if you know they can’t complete the task.
  2. Don’t be afraid. A person with a disability is not sick. They are simply differently abled. Make eye contact, smile and say hello, just as you would anyone else.
  3. Follow the “golden rule.” You know the one: Treat others as you would like to be treated. If you do that, then you can’t go wrong.

Whether it’s a coworker, classmate, neighbor or stranger, we have the opportunity to meet people with disabilities every day. Take the time to get to know them. They can bring a new perspective into the workplace and you may find you have common interests. The best part, you could make a new friend.

Patti Hays

From the CEO: Disability Awareness

In January, many of us watched President Trump’s State of the Union address. We saw many invited guests stand and be recognized during his hour plus speech. What I later learned was that each member of Congress is also allowed to invite a guest. Senator Cory Booker from New Jersey invited a Deferred Action for Childhood Arrivals (DACA) recipient and Representative Jim Bridenstine from Oklahoma invited Bill Nye (The Science Guy!).  Many of the invited guests were opportunities for members of Congress to showcase their concerns regarding sexual assault, immigration, Puerto Rico relief and other timely issues.

Senator John Neely Kennedy from Louisiana brought Calvin Franklin.  The Washington Post highlighted this inspirational story the next day.  Calvin is a member of the custodial staff in the Russell Senate Office Building. They met two years ago, soon after Calvin started his job. Senator Kennedy was one of the first ones who stopped and talked with him in his new job acquired through the local Goodwill’s AbilityOne Program. Calvin wants to be a Firefighter but has a learning disability and is scared to try.

Kennedy acknowledged Calvin’s hard work saying he…”deserves a front row seat to history unfolding”. March is Disability Awareness Month.  Who do you know who works hard and deserves that front row seat?  Perhaps, like Calvin, they are looking for a better job but are afraid to try. I would challenge you to introduce yourself. Learn their story. Ask about their dreams.  Perhaps you, like Senator Kennedy, can make a new friend and help them be a part of history.

Calvin Franklin with Senator Kennedy (photo from Franklin’s Twitter)

New Year’s Resolution: Inclusion

Most of us have had the feeling that we didn’t belong at some time in our lives. Whether you were a gawky adolescent struggling to find your identity, or working in an environment in which your personality does not fit. For people in a minority group, this feeling is ever present. People feel isolated from society, especially individuals with disabilities. It is getting better, but we have a long way to go. AWS Foundation is dedicated to making Northeast Indiana an inclusive community for individuals with disabilities through advocacy and grantmaking.

ADA  requirements are the bare minimum a business or organization must do to accommodate individuals with disabilities. Yet people are still excluded. It takes special building design considerations like placing the elevator next to the stairs, programming that makes adjustments for those with special needs and advertising that includes individuals with disabilities without making them stand out. Science Central’s Special Abilities Days makes extra accommodations for sensory sensitivities such as lower noise levels, increased light in dim areas and extra staff create a safe and inviting environment for an enjoyable experience. The Northeast Indiana Regional Partnership has done a fantastic job including individuals with disabilities in the diversity of their promotional materials.

With the creation of the City-County Disability Advisory Council, the greater Fort Wayne area is moving in the right direction for inclusion. We see a growing number of organizations making efforts each year. Our challenge for you in 2018 and beyond is to think about what you can do to create a more inclusive community. Feel free to run your ideas by us and together we can make a difference in the lives of individuals with disabilities.

2018 Board of Directors

Happy New Year!

AWS Foundation has much reason to tackle that deadly sin of pride when reflecting on some of our 2017 regional accomplishments. What follows are the highlights.

Inaugural County/City Disability Council:  Through the collaboration of the Northeast Indiana Disability Advocacy Coalition (NEIDAC) and government officials, the Disability Council for Allen County and the City of Fort Wayne was created. This group will strive to excel in accessibility and participation for all people with disabilities throughout the community.

Buddy Benches:  Ten area elementary schools now have playground buddy benches designed by area artists. The number of these will continue to grow annually as we help schools build an attitude of inclusion rather than bullying during recesses. To learn more about the Buddy Benches click here.

System Navigation: The process is well under way to establish an on-line navigation system that will guide families in finding answers to questions, access to services and assistance in ensuring optimal resources for individuals with disabilities. This complex process will see a beta test in 2018 as we move to an application that will service individuals, caregivers and providers throughout the region.

Giving Tuesday: $44,727 in matching funds was given to 9 disability nonprofit agencies as part of our first #GivingTuesday event. More great news was that 95% of the dollars came from NEW donors to the organizations!

Expanded land purchase at Camp Red Cedar: Two land parcels adjacent to Camp Red Cedar were purchased by AWS Foundation.  More than 20 acres will be available as this valuable day camp and year round equestrian program continues to serve in an inclusive capacity for years to come.

Special Needs Safety Kits for Children: Through the community efforts of the fire stations across Northeast Indiana, area provider agencies and the Developmental Clinics of Lutheran Health Network and Parkview Health, we are well on our way with the distribution of 2,000 safety kits.  These kits, assembled by special needs students learning job skills, contain information and aids to help with the safety of homes for the family with autism or other intellectual and developmental disabilities.

Canal boat christening: Friends of the Rivers launched Sweet Breeze this spring, a canal boat providing river views of the city paired with historical perspectives.  Through a grant from AWSF, Sweet Breeze is fully accessible with a flat entrance from the dock and a bathroom large enough to accommodate a wheelchair. Look for it returning to the rivers in the spring.

Riverfront groundbreaking: Sweet Breeze will also provide a great view of the developing Riverfront park.  Through work with developers and input from individuals with a variety of disabilities, this park has been designed with an emphasis on inclusion.  A few features are a supported lawn base to allow full wheelchair access of the entire lawn space; all bathrooms are handicap accessible; accessible playground equipment; and electronic interface for all signage.

Record grant giving amounts:  2017 saw $4,607,730 in grants awarded to 86 grantees.  These grants have helped individuals with disabilities become more involved in the expansion of the region. More social venues were welcoming. More job training opportunities were provided. Agencies that provide vital daily services for maximum inclusion and independence were able to expand their reach.


Buddy Bench in honor of Ian Rolland, created by Justin Johnson

We can’t let the reflection of the past year finish without mentioning the passing of a founding board member. Ian Rolland was integral to the concept of AWS Foundation’s formation when it was just an idea in 2006. He continued as an active board member until June 2016. His service to AWSF was memorialized in one of the first buddy benches that can be found at Forest Park Elementary School.  Ian’s challenge to all of us to be not just aware of the community in which we live but to be willing to get involved in social issues has contributed to Northeast Indiana being a more inclusive community for people of all abilities. Let us all honor his memory by taking a more active role in creating an inclusive community this year, and for many more years to come.

Captain Mark Kelly

Disability can happen to anyone at any time of their life. This fact was evident when Captain Mark Kelly spoke about his wife’s (congresswoman Gabby Giffords) traumatic brain injury which was caused by an assassination attempt in 2011. His inspiring words captivated a sold out Rhinehart Music Center at IPFW on October 12th, co-sponsored by AWS Foundation as part of our 10th anniversary celebration. As advocates of the disability community, we share his message of endurance and determination to achieve success.

CEO, Patti Hays & Board Chair, Tom O’Neill with Captain Kelly

Captain Kelly’s eloquent tale of his space travels intertwined with his wife’s political career impacting their lives in an unpredicted way. Their story encompassed overcoming fear and obstacles to reach goals. His thought provoking message reflected on his aspiration to be the first person to travel to Mars and his satisfaction in all he achieved working toward that goal. Fighting in a war and traveling to space twice, though statistically more dangerous than serving in a political office position, turned out safer than his wife’s career. He professed his pride in his wife’s drive to cast her vote in congress on an important issue, mere months after her injury, to make one last impact before she left office.  Sharing their lives after her injury shed light on the challenges families face with a disability diagnosis and shows what optimism and determination can achieve in the face of adversity.

Honored to host such an engaging speaker, we thank everyone who joined us that night. May Captain Kelly’s words serve as motivation to overcome your own obstacles and stay optimistic in times of distress.

Season of Giving

In November we start to wind down the year and plan for the holiday season. It’s a time for shopping for that perfect gift, meals around the table with family and, hopefully, charitable giving. Giving Tuesday, which happens on the Tuesday following Thanksgiving, is a global campaign to promote philanthropy. As part of our yearlong 10th Anniversary celebration, AWS Foundation is participating in Giving Tuesday with $110,000 in matching dollars.

We chose 11 nonprofit disability service providers, each to receive a dollar-for-dollar match up to $10,000! These organizations are: Arc of Noble CountyArc of LaGrange, Arc of Wabash, Bi-County Services (Bluffton), Carey Services (Marion), Easterseals Arc of Northeast Indiana, Life Adult Day Academy (Fort Wayne), Passages (Columbia City), Pathfinder Services (Huntington), RISE, Inc. (Angola), Turnstone (Fort Wayne).

To qualify for matching funds, donations must be:

  • Given on Tuesday, November 28th 2017 (either in person or electronically)
  • New or increased donations. This means if you have given to your chosen organization before, only those incremental dollars will be matched.

These organizations change the lives of individuals with disabilities in Northeast Indiana and we want to help them. This is your chance to give to a new organization or increase your annual donation. Give what you can, every dollar helps.

“Beam Me Up, Scotty”

This iconic command from Captain Kirk in the 1960’s Star Trek series quickly became a favorite catchphrase.  Getting “beamed up” to the Starship Enterprise meant a speedy escape from unfriendly aliens armed with powers and weapons to destroy the Enterprise and its crew.  Aside from the humorous notions of earthlings using the command to escape their own undesirable situations, it did serve as an intriguing vision of future transportation.

Back on earth, transportation options are increasing – think Lyft, Uber and self-driving cars – yet six million people with disabilities are still unable to access transportation for their basic needs, according to the most recent government transport survey conducted in 2003. The Americans with Disabilities Act provided equality for riders but only for public transport:  all new vehicles used for public transit must be accessible, transit operators must provide paratransit services for individuals who cannot use available mass transit, and existing rail stations and all new rail stations and facilities must be accessible.  It’s not an exaggeration to say that everyone takes transportation for granted and is usually the last thing we think about, if we think about it at all.

E.B. White, the author of Stuart Little and Charlotte’s Web, said, “Everything in life is somewhere else, and you get there in a car.” As we advocate for inclusive employment, social and recreational opportunities, transportation has to be central to the conversation. Not just the accessibility but also affordability.  Allen County’s transportation services for the disability community are good but keeping up with ridership demand is an ongoing challenge.  Citilink’s Access service projects 58,000 passenger trips in 2017 in addition to 22,000 trips departing from the fixed routes.  An alternative to mass transit is CTN, providing 50,000 passenger trips annually for 3,800 individuals unable to access public transportation.  Federal funding cuts in all transportation programs make service expansion difficult, if not impossible, especially in rural communities.

Local taxi services, along with Lyft and Uber drivers using accessible vehicles, can help meet the demand however, there are too few and the costs are often unaffordable.  Self-driving cars offer the next best solution to meeting ridership capacity and hopefully, are also affordable.  Disability and transportation advocates have been working with companies on accessible design such as style of door handles, floor height, lighting, ramps, lifts, voice-activated navigation and communication systems to accommodate individuals with any type of disability.

The future is promising for how quickly people with disabilities will get to where they want to go, and when they want to go.  Scotty – we may not need you after all.

Patti Hays

From the CEO: Transportation

Earlier this year I visited Kitty Hawk, North Carolina and learned a little more of the story of the Wright Brothers and their first flight.  That initial flight of just 852 feet opened the door to a rapid evolution of not just flight but discovery of a freedom through a new means of transportation.   One cannot look at the news today and not see stories that center on transportation.  There are stories about travel to Mars with SpaceX’s Elon Musk as well as the promise of autonomous (self-driving) vehicles. We also viewed the devastation of Puerto Rico when, without transportation, there was no way to distribute supplies after Hurricane Irma.

Transportation and specifically travel are synonymous with freedom and independence. Slaves could not have traveled without the necessary papers.  Loss of driving privileges for the elderly has been linked with serious depression and suicides.  For the person with a disability access to transportation is life transforming.  Whether it is walking, public transit or vehicle travel, transportation is the access to work, shopping, recreating, socialization and medical and spiritual care.  One third of people with disabilities have NO public transit available to them. For too many the biggest barrier to work is dependable transportation.  For too many there is no sense of freedom.

Northeast Indiana has a mixture of urban and rural areas with varying transportation options.  With more than 100 miles of trails (for those with the ability) shopping, churches and socialization may be a little more accessible.  Public transit and paratransit with Citilink and CTN in Allen County and regional providers in surrounding counties are invaluable as they provide access to planned medical care and events.  Spontaneous opportunities or sudden changes of plans, however, can be problematic.  For the person where income isn’t a problem, there are significantly less transportation problems…but those are not the routine.

In 1800, a trip from NYC to Indiana would have taken five weeks on horseback.  In just 50 years, that was trimmed to just two days as trains were introduced. Now, astronauts circle the globe in about 90 minutes. AWS Foundation dreams of an evolutional change to provide the freedom of transportation for the person with a disability.  The promise of autonomous vehicles will be truly transformational if we can overcome the barrier of cost.

The United States, one of the only countries with the ability to put people in space does not even rank in the top ten globally for public transportation. The country that can have an astronaut seeing two sunrises and sunsets in an hour and a half, can surely find a consistent, reliable and responsive means to get a person from home to a destination to see that same sunset or movie and experience some sense of independence.

The Best Prize

Remember when you landed your first job?

If you were a high school student, you probably didn’t have much work experience, if any, but that didn’t matter. You were willing to work, the business was willing to hire you because there were job openings and you would get on-the-job training.  Applying for the job was easy. Fill out the application in person, maybe an interview was required and shortly the phone call or letter came. Now think about what influenced your decision to accept the job. Immediate need for money, your parents told you to get a job, or you had a career goal and pursued a specific job.

Self-employment might have been an option such as mowing yards, babysitting, cleaning houses or setting up a lemonade stand. Family and friends likely were encouraging supporters both financially (by hiring you) and emotionally by telling you that “whatever you set your mind to you could do it.”

If you were a high school student with a disability (intellectual or physical), would you have had the same opportunities and support? You were willing to work, jobs were plentiful and on-the-job training was available. Then barriers appear – completing the application was challenging, as was the interview. Add to that skepticism from others on your ability to do the job or becoming an entrepreneur.

Theodore Roosevelt said, “Far and away the best prize life has to offer is the chance to work hard at work worth doing.” Since the passage of the Americans with Disabilities Act in 1990 prohibiting discrimination against individuals with disabilities, employment rates have not risen significantly in spite of appropriate accommodations in the workplace, accessibility to buildings, schools and public transportation. In the 90’s the employment rate of individuals with disabilities was 50.2% compared to 84.4% without disabilities. However, the recession took its toll on any progress as the first to lose jobs were those with disabilities.

Given our country’s current robust economy the employment outlook is, not surprisingly, encouraging. The Bureau of Labor Statistics Job Report for July 2017 indicated 33.1% of people with disabilities were working yet the unemployment rate tells a different story – the number of individuals with a disability looking for work is twice that of individuals without a disability.

As Indiana approaches a near historically low 3% unemployment rate, “we are hiring” signs are everywhere. But who are we hiring?

A key initiative of AWS Foundation is advancing Education and Employment for individuals of all ages and abilities. We believe linking education and employment helps ensure that students with disabilities acquire skills to be successful in the workplace – counting money, placing an order, telling time, learning a work process, taking public transportation, engaging in informal conversation or problem-solving, describing a situation or issue. In-school experiences coupled with community experiences reinforce learning and help students identify potential careers. Such job-readiness activities close the experience gap for jobs posted “no experience necessary.” Grants supporting several organizations in northeast Indiana are becoming models for how to best teach these skills, track progress and ultimately place graduates in jobs.

So, what can you do to give a person with a disability the best prize life has to offer? How about that first job…

Want to explore hiring individuals with a disability?  Several new efforts are underway to connect employers with organizations providing training and placement. Let us know how we can help.